Monday - part 1
Tuesday - part 2
Wed - part 3
Today - part 4
untill I finish..
CANCER IS NOT FUN AT 41
I honestly don't know if I can do this, relive it. I know once I start, I will have much to say. As I sit here in front of my PC, my eyes are tearing up already. I don't know where to begin, I know how it ends....it's the in- between that is very difficult for me to articulate and most of all remember.
I guess I will start, from where I left off yesterday. Things happened at lightning speed for the next year. A lot of it, most of it, is vague in details, except for the raw emotion I felt and still feel. Maybe I am still in shock, still in denial, still lonely, still angry, still devastated by my loss.
COMING OFF OF THE CLOUDS - STRAIGHT INTO HELL
When we all returned from our vacation, like I said, Sweet Annie's father noticed a weight loss in Annie.
And like I also said, with my head in the clouds, I just didn't see it. She was always thin, that was just Annie. I certainly did not see what was coming. None of us did.
She had no symptoms, no pain, no cough.........nothing.
After her parents constant nagging, she reluctantly went to our local Mayberry quack.
"Are you under any kind of stress Anne-Marie?
Yes, my mother just went into remission for throat cancer. Yes, I have been a little worried.
Well, here is a quick fix, a prescription for an anti-depressant".
(an ancient one that doctor's don't even prescribe any more)
Now, knowing Annie by now you must have realized she didn't have a depressing day in her life. She was the sunshine that healed everyone.
She took the meds and had a bad reaction. Thank goodness.
Back to the quack.
"Let's do a physical, you haven't had one in years, and a routine chest x-ray. Hmmmmmmmm.............something is there, I'll get back to you by the end of the week. "
Again details are a blurr.
THE PHONE CALL
The phone ran, I picked it up.......hello.
All she said was "it's cancer".
I'm on my way, I think I said to her, if that.
I had a five month old son at the time and basically tossed him to one of my daughters, which one, I don't remember.
I ran out of the house as fast as I could with no shoes on into my car. She only lives less than a mile away, I was speeding and crying, which seemed like forever.
I screeched into her drive way Mod Squad style and ran into her house barefoot. Her neighbor Rose was there with her already. She saw Annie upset coming out of her car from the doctor's appointment and came over right away.
I ran to her and helded her and we just cried.
I took her face into my hands and said YOU ARE GOING TO BE OKAY !
Funny thing, I was the first one she called, not her husband, not her family, me.
Her husband walked in the door from work and we were all crying. One of us said she had cancer and he just walked around in shock.
Again, I don't remember, but I don't think he even reached out to touch her.
PHILLY IS TOO FAR
Against my wishes Annie decided on a doctor in Philadelphia to remove part of her lung. You see we only live 30 miles from New York City and I felt they had the best doctor's in the world. Sloan Kettering is the best but she decided she wanted her mother's doctor who "saved her from cancer" in PA. I believe it was in October when she had her surgery. I don't even remember what month it was.
Because Philly was so far away, her follow up appointment wasn't until January and by this time it began to spread already.
I wish she had gone to NY.
Would of.........
Could of.........
Should of........
JUDY
When she arrived home from Philly, Annie was in unbearable pain. She said if she knew it would be so horrible she never would have done it.
Several times she asked me if I wanted to see the scar on her back and I said no. In later months she eventually had a hole in her chest or a port for chemo. I had diffiulty looking at that.
Her childhood friend Judy, from Cape Cod came down to stay for two weeks while she recovered. Part of me felt jealous because I wanted to be the one. I took a step back and let Judy take care of our patient.
She was wonderful, I must say and even though she was a bit rough in her words we became allies in this war against cancer and "the ones in denial".
One day Judy and I were talking out on the back porch smoking our cigarettes. I asked her how they met. She said they were very little and were neighbors, under five years old at the time. She said the instant she saw Annie's face, she fell in love with her. They had been friends ever since. Part of me felt jealous again for those extra years they had together.
That is exactly the way I felt with Annie at our first meeting on the grassy hill on her sunny front lawn.
I also know we two weren't the only ones who felt that way about her. Annie had that effect on everyone. She immediately put you at ease.
ROSE
Rose lived next door to Annie. She also happened to be a long time friend of my family. I always loved Rose since I was a little girl growing up around the corner.
My parents divorced and in usual fashion friends take sides. Dad and Rose became best of friends. (Rose is married with two adult children).
Oh, what can I say about Rose?
I just love her. She is 60 years old, Italian and the nicest, feistiest woman I have ever met. She is a true beauty inside and out. She cracks me up.
She was my other ally in this war against cancer and "those in denial." There were days I questioned my own sanity because of the actions of others around us and she was always there for me to say "it's them, not you" and vice versa.
We spent a lot of time together healing Annie in the following year. We shared numerous tears too. I don't know what I would have done without her. She is like a second mother to me but also a friend.
Often when we were at Annie's house we would clean. Annie would get so mad at us. We would do her toilets, fold laundry, clean out her refrigerator.......even clean her teenager's room. Rose would laugh at me holding the baby with one arm and vacuuming with the other. This was our way of coping by keeping busy. A clean house meant everything was okay.
During all of this time, Rose's daughter was pregnant and subquently had her own beautiful daughter. This was Rose's first grandchild and she often said she couldn't even enjoy it.
Rose often called Annie and I her two other daughters. She was and still is such a blessing in my life. We are forever bonded or as she said to me the other day forever scarred.
We spoke just today about how we are not coping with St. Patrick's Day tomorrow very well. We also laughed about silly stuff. I told her I was packing up all the kids tomorrow and their friends and we were going to the parade in New York City.......she said Annie would be happy.
CANCER IS A ROLLERCOASTER
Again, the details are vague. I wish I had a blog at the time to document all that happened medically.
One day we were up- relatively speaking - with good news and the next day - sometimes the same friggin day - we were down and without hope.
It was an emotional rollercoaster all of the time. I always hated rollercoasters.
"THOSE IN DENIAL"
This is where my anger comes in. I felt that her husband did not step up and take control of the situation. I felt that her family, mom, dad, sister and brother did not understand how serious this was until the very end. I am talking about the last few days when it finally hit everyone. They all treated her like she was a burden and stupid at times.
"Why are you doing this, why aren't you doing that ?"
She knew it and she felt it and I was angry.
I am trying so hard not to make this post about them cause it is not meant to be, it's about a tribute to my friend, not the people who let her down.
Everyone deals with crap differently I have to contiune to remind myself. Bottom line is that I know this hurt Annie very much. I am still angry at THOSE IN DENIAL.
I try so hard to be non-judemental, but it's very difficult. I understand there are lessons in life and far too many to mention here. I know already, I get it, people deal with shit in different ways. OKAY !
I think part of it is an ethnic thing. The Irish are the kings and queens of denial. No, Uncle So-and-So doesn't have a drinking problem, he's just happy or he's just tired!
My mother often tried to explain to me that the reason they are not stepping up and the reason they are in denial was because I allowed it. I did it all.
One of the only times I said no to Annie and insisted her husband take the reins was when she needed injections. I just flat out refused and said no. I couldn't even fathom the idea of hurting her with a needle. I was the one who held her hand through all of the injections. She hated needles and would squeeze my hand until it hurt. I just couldn't do both.
My own family is guilty of this denial thing. We never fight, we just harbour resentments. I know I do it.
Ironically, in the end of all of this, it was my own mother and I who were not on speaking terms.
And to this day. even though I and Rose were the only ones who was there for Annie at times, there are some of " those in denial" who do not speak to us. I think it is their guilt that haunts them.
I AM NOT A STRONG PERSON
I am not a strong person emotionally. I fall to pieces very easily by other people's pain. In an emergency I panic to the point I freeze and cannot move or speak.
Somehow I was thrown into a crash course on cancer. Intellectually and emotionally. I became nurse, doctor, care-taker, hospice, priest..........
I just wanted to be her friend, I didn't want the responsibility. I simply wanted to make her comfortable and to be there for her.
During this horrible year, I took Annie to 90% of her doctor's visits. Even though I was not a family member the doctor's all got to know me and let me take notes, ask them questions, call them with more questions, ask about prescriptions, break through pain, side effects, and more.
All of the doctor's loved Annie. She would always ask how they were doing, how were their children, how was their vacation.......?
In a room full of old people dying of cancer, Annie made everyone smile. We all knew she didn't belong there, she was just too young.
For some reason I was naive about cancer. I just never experienced it with anyone close to me. I thought, okay you have cancer. This sucks. We'll get the best doctor and help you. That is not how it works. You have many, many doctors. They don't even consult with each other unless you ask. I soon realized that I had to take matters into my own hands and try to fix this. I took notes constantly and researched online. I had a crash course in cancer in a few months. For example, before radiation treatments begin, they actual tattoo your body where the treatment is needed. But, if you asked me anything now, I wouldn't remember a thing.
But at the time, I kept track of everything. The craziness of pills, lots and lots of pills which would change daily. Doctor's appointments, treatments, etc.
Annie would be on the phone with a doctor and ask me
"Jacque where is the cancer now?
In your adrenal glands Annie.
Oh, okay thanks."
That is what I am good at - organizing.
I often wonder, if I didn't have a baby and gave up my job, who would have taken care of Sweet Annie? If things didn't work out as they did, I would have been working a full time job as an account executive. In the end, I thanked God for the privelage of being there for her.
CARDS AND FLOWERS, FLOWERS AND CARDS
Almost immediately news spread almost as fast as her lung cancer. Everyday I went to her home to take care of her and everyday she got flowers and cards and nice people from church taking turns dropping off meals for dinner. It was always pasta by the way.
As the months progressed this all but stopped. No one called, no one sent flowers and no one sent cards.
I guess cancer makes people feel uncomfortable. Isn't that just a fucking shame? Pretend it's not there and it will go away. More denial.
I became to resent people very quickly. I was not naive anymore and guess what........not all people are so good and nice as I thought.
As far as I was concerned I was disgusted with the human race as a whole. I was disappointed in everyone.
Just simply making a meal and dropping it off meant so much to her and her family. This alleviated the burden of Annie and her husband of doing simple things and allowed her husband to concentrate on her, not meals, not mowing the lawn, etc. I hated it when I spoke to Rose on the phone and could hear Annie's husband mowing his lawn. Leave the lawn alone and go to your wife! Everything irritated me.
to be continued...